About Us — This is the first and only web resource designed to bring people with Cogan's Syndrome together. We'll gather links to relevant resources and post relevant news items. Given the rare nature of the disease, the difficulty diagnosing it, and the hearing loss, most people afflicted with the disorder are in need of someone with whom they can communicate. We encourage our "coganites" to meet. We also try to discourage the nonsense rumors  and old ideas what cogan's syndrome was thought to be - a death sentence.